The perceptions of voluntary aids caregivers concerning hospice managers' provision of support
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Gxabuza, Rosina Nomathamsanqa
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University of the Free State
Abstract
Showing abstract in English
English: The challenge of HIV/AIDS is a global issue. Instead of decreasing the
number of people infected with the disease is increasing. Fortunately we
have men and women who volunteer to fight the increase of this
pandemic. These heroes and heroines are voluntary AIDS caregivers who
are the mainstay of care of people with AIDS.
However, the fact that caregivers suffer from loneliness and social
isolation related to stigma and discrimination cannot be ignored
(cjFlaskerud & Tabora, 1998:21). Voluntary caregivers could benefit
from the opportunity to express basic emotions concerning financial,
emotional, physical issues and an open line of communication should be
in place. Providing an avenue for emotional expression may enhance both
physical and mental health to voluntary AIDS caregivers.
This is a qualitative study undertaken to explore the perceptions of
voluntary AIDS caregivers concerning hospice managers' provision of
support. An explorative, descriptive, contextual and qualitative design
was used to determine the perceptions of AIDS caregivers concerning
hospice managers.
Voluntary AIDS caregivers were selected from hospices of the Motheo
District. A pilot study was conducted prior to the commencement of the
main study. This resulted in paraphrasing the central question as in the
"grand tour" (Spradley, 1980:49), Marrow and Smith (1995:42) who ask
question such as; "Tell me about your self."
Initially two focus groups were selected, comprising of ten participants in
each group. Participants were requested without leading them to give
detailed information during interviews. Saturation principle was not
reached with the two focus groups, as there was no redundancy of
information. Subsequently two more focus groups were selected in an
endeavor to reach the required saturation point. Eventually four focus
groups participated in the study.
Data collected was analysed according to Tesch [1990] in Creswell
(1994:155) and also by making use of the N VIVO program, a design for
qualitative research used to ensure that the complex data was correctly
and systematically analysed.
The data analysis was followed by a literature control. The findings with
regard to the perceptions of voluntary AIDS caregivers concerning
hospice managers' provision of support did not differ significantly in
personal and vocational support that were identified as main categories.
The researcher made recommendations and suggestions were made by
voluntary AIDS caregivers are easy to follow and implement. Limitations
encountered are discussed.